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Privacy policy

Privacy Policy for AboutSpherocytosis.com
Last updated: 29 January 2026

This Privacy Policy explains how personal data are collected, used and protected when you visit the website AboutSpherocytosis.com.
The website is an informational project focused on hereditary spherocytosis and sharing personal experience with this condition.

1. Data Controller

The controller of personal data is the operator of the website:

Josef Šnábl
Karla IV. 1230/4
Litoměřice
Czech Republic

Contact email:
📧 info@aboutspherocytosis.com

(hereinafter referred to as the “Controller”)

2. What personal data we process
a) Contact data

If you contact us via email, the following data may be processed:

email address
content of the message
Purpose of processing: responding to inquiries.
Legal basis: legitimate interest of the controller (Article 6(1)(f) GDPR).
Retention period: for the time necessary to process the communication.

b) Technical and operational data

When visiting the website, certain technical information may be processed automatically by the web server and analytics tools.

This may include:

anonymized IP address
browser type and version
operating system
device type
date and time of access
pages visited
referring website

These data are processed for the purpose of ensuring the proper functioning, security and statistical analysis of the website.
These data alone do not allow direct identification of a specific individual.

3. Cookies

The website uses cookies to ensure proper operation and to improve the user experience.
Cookies are small text files stored on your device.
The website may use the following categories of cookies:

Essential cookies
These cookies are necessary for the proper functioning of the website.

Statistical cookies
These cookies are used to measure website traffic and improve content. They are used only with the user's consent.

Cookie preferences and consent management are handled through the Complianz consent management platform.
Users can change or withdraw their cookie consent at any time.

4. Google Analytics

This website uses Google Analytics, a web analytics service provided by:

Google Ireland Limited
Gordon House
Barrow Street
Dublin 4
Ireland

Google Analytics uses cookies to collect information about how visitors use the website.

This information may include:

pages visited
time spent on pages
approximate geographic location
device and browser information
IP addresses are anonymized before being stored.

Google Analytics is activated only after the user gives consent through the cookie banner.

Google Privacy Policy:
https://policies.google.com/privacy

5. Third-party services

To ensure the proper functioning of the website, some data may be processed by trusted third-party service providers, including:

web hosting provider
analytics service provider (Google)

These providers process only the data necessary to deliver their services.
The Controller does not sell or share personal data for marketing purposes.

6. Transfer of data outside the European Union

Due to the use of services provided by Google, some data may be transferred outside the European Union.
Such transfers are carried out in accordance with GDPR and based on standard contractual clauses approved by the European Commission.

7. Data retention period

Personal data are retained only for the time necessary for their purpose:

Contact emails
→ until the communication has been resolved

Analytics data
→ according to Google Analytics retention settings

Cookies
→ according to their expiration period or until consent is withdrawn

8. Rights of data subjects

Under the GDPR, you have the following rights:

the right to access your personal data
the right to rectification
the right to erasure (“right to be forgotten”)
the right to restrict processing
the right to object to processing
the right to data portability

If you wish to exercise any of these rights, you may contact the controller using the email address above.

You also have the right to file a complaint with the supervisory authority:

Office for Personal Data Protection (ÚOOÚ)
https://www.uoou.cz

9. Security of personal data

The controller has implemented appropriate technical and organizational measures to protect personal data from:

unauthorized access

loss
misuse
alteration or disclosure

These measures include secure hosting, encrypted HTTPS connection and standard website security practices.

10. External links

The website may contain links to external websites.
The controller is not responsible for the privacy practices or content of those external websites.

11. Children's information

This website does not knowingly collect personal data from children under the age of 13.
If you believe that a child has provided personal information on this website, please contact us and such data will be removed.

12. Changes to this Privacy Policy

The controller reserves the right to update or modify this Privacy Policy at any time.
Any changes will be published on this page with an updated effective date.

13. Contact

If you have any questions regarding this Privacy Policy or the processing of personal data, you can contact the controller at:
📧 info@aboutspherocytosis.com
Medical Disclaimer
The information on this website is based on personal experience and educational sources and should not replace professional medical advice.